I think there are two types of IVF patients. The first has the intense need to know as much as possible about IVF. This patient will scour all resources (books, google searches, medical journals, infertility blogs, etc.) in order to be as informed as possible. This patient just can't know enough about it. The second type of patient trusts her doctor to know what's best. This patient learns what she needs to in order to survive the IVF process, but she doesn't go digging to learn anything above and beyond that. This patient follows instructions well.
OK. I know this is a horrible generalization, but I think you get my point. I, and most of the blogging infertiles I read, are type 1 patients. I guess I thought everyone was like this since this is what I am and what I am surrounded by. Not so. Yesterday I posted on a message board about the
questions I had with my protocol. I noted that I had asked to be switched from progesterone suppositories to PIO for the reasons mentioned in my other post. Someone replied that they had been on suppositories during their previous IVF, and they hadn't realized that there was another option. It just baffled me that this person had gone through IVF without ever hearing about PIO.
I think, all in all, it's good to be a type 1 patient, but it does have it's down sides. At one point during my husband's treatment, his doctor told me that I was asking board-level questions. The nurse assigned to my husband during his big surgery asked me if I was also a nurse based on how I was speaking to my husband's doctor and the other nurses. To me, these are good things. Infertility and IVF are the most challenging things I've ever encountered. The only way for me to survive mentally and emotionally is for me to be super informed. I know more about the male reproductive system than I ever dreamed I would know. Not only is being a type 1 patient the best way I can see to make sure my husband and I receive the best medical treatment for our specific case, it's also a coping mechanism for me.
Now, the down side. It can make me a little crazy at times. Yesterday, instead of "getting excited" about receiving my protocol, like a lot of new IVF patients would, I worried incessantly about my protocol. I know there's no such thing as the perfect protocol, especially since this is my first IVF, but I wanted to make sure that mine was as close as possible. I just couldn't stop worrying about whether or not I was going to be on Lupron for too long.
I guess I should start trusting my doctors more, but I can't. Ever since my OBGYN in South Bend told me that the fact that we hadn't conceived by that point was probably due to stress and that once my husband was out of law school we'd probably be able to conceive more easily. And ever since my first OBGYN in Houston told me that I shouldn't have fertility testing done, due to the fact that our insurance wouldn't cover it since our infertility had already been determined to be male factor, I don't trust doctors as a rule. I eventually learned to trust my husband's urologist, but only because I had done enough research to know that everything coming out of his mouth was right. One thing that infertility has taught me is that I have to be my own advocate when it comes to my and my husband's healthcare. Never again will I walk into a doctor's office without having done my research beforehand.
I guess I should qualify all of my above statements with the fact that I think people should do what works for them. If you're a type 2 patient, and that works for you, by all means don't listen to me. I just think people should take some time to inform themselves. I don't think, however, that anyone needs to drive themselves crazy like I do. I have to admit that I'm obsessed. A lot of people would think that I'm insane for gluing myself to the internet all day long. This is how I deal with all of this. If it's less stressful for people to be a type 2 patient or to think, "I would never let infertility take over my life like that," go right ahead. I guess we all just have to do our best to get through all of this however we see fit.